Saltycfgirl

Hello! My name is Samantha and I am 22 years old and have cystic fibrosis. I had a rough start to life being sick all the time. I left high school from how sick I got. It wasn’t until my pediatric CF clinic at rush university figured it out and practically saved me. They diagnosed me with cystic fibrosis in my teens. Once I turned 18, I moved to the adult cystic fibrosis team. I am now seen at the university of Chicago and get the best care. I am now healthy, have a full time job and got my own car which is a Tesla! I still do treatments daily. Vest, nebulizers, inhalers and sinus rinses along with sinus sprays. I spend about an hour morning and night, sometimes more. My sinuses are very diseased with cystic fibrosis and required sinus surgery. We are walking for a cure. It would be amazing to completely get my life back and no more treatments. Even with a full time job and all my accomplishments, I am very tired. It’s very exhausting. I qualify for no big CF drugs like trikafta. I hope in the future my genes will qualify me. 

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