cystic fibrosis walk
My name is Samantha and I am 22 years of age living with cystic fibrosis, and currently NOT eligible for any of the big CF drugs like trikafta. I have rare mutations that puts me at the 10% of CFers who do not qualify for the drugs. I had my make a wish granted in 2021 during the pandemic. I was about to be on the cut off line due to my age. My wish was for a monarch vest, which I did get after my CF doctor prescribed it. It’s been an absolute game changer. No more cords! I can do my treatments wherever I want with zero worries!!
There are approximately 30,000 Americans living with cystic fibrosis . They are moms, dads, sisters, brothers, daughters, sons, and friendswho struggle every day just to breathe. I walk for them. Will you join me andsupport my fundraising goal?
Real progress has been made for those who have CF, but thereis still no cure for this devastating disease and many lives are cut far tooshort. We
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.