I stride for my son Luke and everyone living with Cystic Fibrosis. There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
When Jenna and myself found out we were carriers for CF with ealry pregnancy screenings, and Luke was diagnosed with CF at 2 weeks old, our eyes were opened to a world we knew nothing about. We quickly learned we would be doing breathing treatments at least twice a day, having to give a newborn enzymes to digest food properly with every meal, and going to University of Chicago several times a year to make sure Luke was thriving and not getting any mucus build up in his body.
Managing Cystic Fibrosis has become second nature to Luke and our family. We are thankful that Luke's path has been much smoother than the generations before him. While treatments continue to improve, I dream for a day when Luke won't have to take hours of his day to do breathing treatments, and leave class to go to the nurse's office to take his enzymes before eating a snack.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. The median life expectancy of someone with CF is now 46. That has increased from when Luke was born, but it is not good enough. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.