We have the greatest group of family, friends, co-workers, neighbors and classmates. Your faithful, continued support of cystic fibrosis research has allowed Keith and Kyle to live well beyond their 18 year life expectancy. We cannot thank you enough for the life you give them.
With so many worthy causes which need support, we thank you for considering this one. Keith and Kyle were born with Cystic Fibrosis (CF), a genetic disease in which the body's chloride channels do not function properly, causing thick mucus build up in the lungs, digestive system and other vital organs. As bacteria thrive in these areas, repeated infections occur. This impedes organ function, leading to other diseases such as diabetes, the need for organ transplants and unfortunately, death at far too young an age. In the 1950s, children with CF didn't live long enough to attend elementary school. By 1985, when Keith and Kyle were born, the life expectancy was only 18 years. A child born with CF today has an average life expectancy of over 40 years. Progress is being made, but there is still no cure.
Each year our family and friends participate in this Great Strides walk to raise money for research, in hopes of someday finding a cure. Your generosity has allowed our Team Twins to raise more than $30,000 in each of the thirteen years prior to 2020. In 2020, even with the strains of Covid-19, you still helped us raise over $25,000. You have opened your hearts and responded to our plea for help in such an incredible way. With your generous support we have been one of the leading teams in this effort to find a cure. Your dollars are adding years to the lives of those with CF. We cannot thank you enough.
This year's walk is May 15th in Cincinnati and again will be a virtual event. Our goal is to add additional walkers / fundraisers to our Team Twins, so if you'd like to join us, give us a call at 513-313-5179 or 513-519-0765. It's easy, fun and the experience is memorable. It's not easy to come back year after year and seek your help but we must. So we ask that if your budget allows, please consider helping us with a donation again this year. Help us continue to extend the lives of CF patients. Any donation you can make will be greatly appreciated by our family and all who are touched by this disease.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.