"A salty baby is bewitched, and will surely die" were some of the first words we ever read about Cystic Fibrosis.
At just 8 days, Callie (our youngest of 3) was diagnosed. In her 6 short years, Callie has endured more than most do in a lifetime.
2300+ HOURS hooked to a vest doing airway clearance 1900+ HOURS with a nebulizer over her face for breathing treatments 36,000+ Pills have been swallowed
And her GTUBE pumps liquid in her tummy all day long! #livingthatGlife
In 1950 the age expectancy was only 2, but after 60 years of funding, research, and discoveries someone with CF has an average lifespan of 38, but with a time consuming daily therapy regimen, countless hospital stays, surgeries, and ultimately transplant or lung failure, it certainly isn't an easy journey to endure.
Would you be willing to walk beside us, donate, share with businesses & on social media to create more awareness for Cystic Fibrosis: no act great or small goes unnoticed. 100% of the donations go directly to the Cystic Fibrosis Foundation funding research for a cure!
And to each of you, we thank you. We cannot fight this alone. Thank you for taking a little part of this heavy weight and throwing it on your backs along side us. YOU are the lemonade.
With every candle blown out, atop every birthday cake our little Callie gets, we honor you: for giving us more years to love her, and BEING OUR HOPE!
With gratitude and a full heart,
Colby, Angie, Zach, Tess, and Callie
You can also purchase a fundraising shirt at www.LifeGaveLemons.com and use code: CURECF at checkout for free shipping and an extra THANK YOU gift!
We will be rocking a variety of 'Life Gave Lemons' tees at the upcoming walk!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.