"A salty baby is bewitched, and will surely die" were some of the first words we ever read about Cystic Fibrosis.
At just 8 days, Callie (our youngest of 3) was diagnosed. In her 6 short years, Callie has endured more than most do in a lifetime.
2300+ HOURS hooked to a vest doing airway clearance
1900+ HOURS with a nebulizer over her face for breathing treatments
36,000+ Pills have been swallowed
And her GTUBE pumps liquid in her tummy all day long! #livingthatGlife
In 1950 the age expectancy was only 2, but after 60 years of funding, research, and discoveries someone with CF has an average lifespan of 38, but with a time consuming daily therapy regimen, countless hospital stays, surgeries, and ultimately transplant or lung failure, it certainly isn't an easy journey to endure.
Would you be willing to walk beside us, donate, share with businesses & on social media to create more awareness for Cystic Fibrosis: no act great or small goes unnoticed. 100% of the donations go directly to the Cystic Fibrosis Foundation funding research for a cure!
And to each of you, we thank you. We cannot fight this alone. Thank you for taking a little part of this heavy weight and throwing it on your backs along side us. YOU are the lemonade.
With every candle blown out, atop every birthday cake our little Callie gets, we honor you: for giving us more years to love her, and BEING OUR HOPE!
With gratitude and a full heart,
Colby, Angie, Zach, Tess, and Callie
You can also purchase a fundraising shirt at www.LifeGaveLemons.com and use code: CURECF at checkout for free shipping and an extra THANK YOU gift!
We will be rocking a variety of 'Life Gave Lemons' tees at the upcoming walk!
Connect With Us
ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.