Welcome to our Lillys Sunshine Team page. Thank you for looking.
There are approximately 30,000 Americans living with cystic fibrosis an inherited disease due to the genes of both parents. Just a generation ago the life expectancy of a person with CF was 6 years old. Thanks to amazing research the people who have it are moms, dads, sisters, brothers, daughters, sons, friends and co-workers. They still struggle every day just to breathe. We walk for them and hope you will support our efforts.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Our granddaughter Lilly is 12 years old and thanks to all the research that has been sponsored by the CFFoundation is participating in school and after school activities. She does that by adhering to a strict regimen of breathing treatments, medications and good sanitary practices.
Please support us! Start your own Lilly's Sunshine Team, walk with us, make a donation.
Your help will help add tomorrows to the lives of people with cystic fibrosis.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.