"A salty baby is bewitched, and will surely die" were some of the first words we ever read about Cystic Fibrosis.
At just 8 days, Callie (our youngest of 3) was diagnosed. In her 4.5 short years, Callie has endured more than most do in a lifetime.
1900+ HOURS hooked to a vest doing airway clearance 1000+ HOURS with a nebulizer over her face for breathing treatments 27,000+ Pills have been swallowed
And her GTUBE pumps liquid in her tummy all day long! #livingthatGlife
In 1950 the age expectancy was only 2, but after 60 years of funding, research, and discoveries someone with CF has an average lifespan of 38, but with a time consuming daily therapy regimen, countless hospital stays, surgeries, and ultimately transplant or lung failure, it certainly isn't an easy journey to endure.
Would you be willing to walk beside us, donate, share with businesses & on social media to create more awareness for Cystic Fibrosis: no act great or small goes unnoticed. 100% of the donations go directly to the Cystic Fibrosis Foundation funding research for a cure!
And to each of you, we thank you. We cannot fight this alone. Thank you for taking a little part of this heavy weight and throwing it on your backs along side us. YOU are the lemonade.
With every candle blown out, atop every birthday cake our little Callie gets, we honor you: for giving us more years to love her, and BEING OUR HOPE!
With gratitude and a full heart,
Colby, Angie, Zach, Tess, and Callie
You can also purchase a fundraising shirt at www.LifeGaveLemons.com and use code: CURECF at checkout for free shipping and an extra THANK YOU gift!
We will be rocking a variety of 'Life Gave Lemons' tees at the upcoming walk!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.