We decided that to take a break from pushing hard to meet our goal in 2019. However, 2020 is another year and we are going to work doubly hard this year to achieve our goal of $20,000. We would love to have your help. As you may know, 2019 was a great year for medical research and new medicine. We were blessed with the release of Trikafta, a fabulous drug that helping around 90% of CF patients, including Tre. Tre is doing well and we continue to pray he stays healthy, but CF is not predictable so we need to continue our work.
You all have been fantastic over the years and we hope you find it in your heart to continue.
For 30 years, Great Strides – the Cystic Fibrosis Foundation’s largest national fundraising event – has supported the Foundation’s mission to cure cystic fibrosis and raise awareness for this rare, genetic, life-shortening disease that makes it difficult to breathe. By raising funds with us, you’ll help accelerate innovative research and drug development, as well as advance care and advocacy. Nearly every CF drug was made possible by the Foundation and because of funds raised from Great Strides, people with CF are living longer, healthier lives and pursuing their dreams.
We are working every day to build on this incredible momentum, and we won’t stop until there is a cure for all people living with CF.
There are still many more steps to be taken. Together, we can conquer this disease.
Join me and let’s LACE UP. WALK. and CURE CYSTIC FIBROSIS.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.