Alex celebrated 12 years this year! He has grown a lot this past year as he has started creating his own video games, has taken on individual roles in 2 plays, and is now in 6th grade! And of course he is still amazing us with his incredible memory and fun facts about dinosaurs and animals.
Turning 12 also means even more medicines and treatment in the CF world. Alex has had to endure more treatments many many treatments. These treatments give him a stronger chance to live a longer, healthier life and we wouldn't have them without the Cystic Fibrosis Foundation.
Alex currently takes about 25 pills daily, spends at least an hour a day doing chest percussions and breathing treatments, and follows a "strange" diet that repleshes his salt and vitamins that are lost due to CF.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.