We feel blessed that our children have been doing very well, but we know the reality of CF as a progressive debilitating disease. We are working against time to find a cure.
We are, THE GUARDIANS! Gavin, Zoe, and Caleb are cousins and we continue to do all we can in the fight against this disease for all of them.
Cystic fibrosis is a devastating genetic disease that affects approximately 30,000 children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in the lives of those with CF. Gavin, Zoe, and Caleb are normal kids who have had their ups and downs with this disease but still fight on. They have been doing well overall and their health is a tribute to each and every one of you who have given to this great cause in the past. The drugs and therapeutic advances that have been achieved since their birth are extraordinary, if not miraculous. The medium age of survival keeps climbing and without donations from people like you that wouldn’t happen.
This year, our family will be walking in our local Great Strides walk and we need your help to meet our fundraising goal. We have so many dreams for Gavin, Zoe, and Caleb. We want them to be everything they can and want to be. We want them to live a life that’s happy and free of CF. Until that happens, we’re going to do everything we can to fight for a cure.
If you can't join us for the walk, your generous gift will be used to help support the Foundation’s mission of finding a cure and improving the lives of those with CF. Your gift is 100 percent tax deductible.
Thank you for supporting The Guardians and Great Strides! Together, we can make a difference and “add tomorrows” to the lives of those with CF.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.