March 2022 has rolled in! It's time once again for our annual Cystic Fibrosis Great Strides walk fundraiser. We wish we could go back and share the very first letter we wrote to you 30 years ago! We are so humbled by the fact that many of you have been with us since the beginning. It is equally humbling and heartwarming to look back at the people we've met along the way who continue to support us.
If we've learned one thing these past couple of years it's that research is key. The dedication and commitment of the CF Foundation's doctors and scientists is nothing short of amazing! We have been patient and thankful for every therapy and drug that has helped Alyson over the years. The most recent one, TRIKAFTA (2019), has improved AlysonÃÂ˘EURs quality of life in every way! She is fortunate to have access to it and takes it every day. She is loving her new life in Colorado! She hikes and skis without limitations because of her medicine.
Cystic fibrosis affects 30,000 people in the United States. The Cystic fibrosis foundation relies on all private funding. We sincerely appreciate any donations, large or small.
We continue to look forward to the day when CF stands for CURE FOUND!
Take care and thank you in advance for your support! Patrick, Jean and Alyson
If you wish to contribute, please link to TEAM ALYSON'S secure donation page.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.