Alex celebrated 10 years this year! He has grown a lot this past year as he has moved up into KKZ in karate, performed and sang on stage in 2 theatre shows, and is now moving onto 4th grade! And of course he is still amazing us with his incredible memory and fun facts about dinosaurs and animals.
Turning 10 also means even more medicines and treatment in the CF world. Alex has had to endure more treatments after having the flu in January in hopes that he will get his full lung function back. These treatments give him a stronger chance to live a longer, healthier life and we wouldn't have them without the Cystic Fibrosis Foundation.
Alex currently takes about 25 pills daily, spends at least an hour a day doing chest percussions and breathing treatments, and follows a "strange" diet that repleshes his salt and vitamins that are lost due to CF.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
The 2020 year has been a rough one for all of us as we start to learn to live a "new norm" in healthcare awareness. We understand that financial support this year may not be possible. PLEASE, do not feel obligated. We are grateful for all you’ve done in the past and your part in CF advancements.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.