I am a 20-year-old living with CF. I was 10 when my sister got diagnosed so the doctor decided to test me, and we found out I have CF, too. My lung function (FEV1) is nearly always above 100% and my numbers have been even better after starting Trikafta in November of 2019. I just finished my junior year at Western Kentucky University, majoring in Physics. I work at the campus Papa John’s pizza to help pay for tuition. My hobbies include playing games on my computer with my friends, listening to lots of music, longboarding around campus, and snowboarding with friends during the winter.
This year, I'm participating in the 2021 Great Strides Virtual event on May 15. If you want to help Add Tomorrows you can donate to the Wacky Waymeyers.
Any amount you can donate is greatly appreciated!
Because of the support generated by events like the Great Strides Walk, the progress made by the CFF in recent years is truly amazing. The work to individualize treatment to correct the specific gene defect has led to some very successful treatments for many CF patients and has also been expanded to help other genetic diseases including cancer. CFF researchers have also been working with gene editing using CRISPR and the CFF is working in conjunction with many other researchers with the goal of curing many genetic diseases.
Please support me!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.