Caroline Rose
We are walking in ONE WEEK for Caroline on May 5th 2024. If each of my facebook friends felt led to give $5 each, I would be able raise over $5,000 for The Cystic Fibrosis Foundation in Caroline's name.
Where does your money go?
Directly to the CF Foundation.
What Is the CFF?
The CF Foundation is the reason the life expectancy of those living with CF has gone from infancy to a median age of mid 40s (for Caroline's specific type of CF mutations). They are the cornerstone for funding research and pushing pharmaceutical companies to care about this genetic disease.
The CF Foundation is the reason Caroline is on multiple life-changing medications.
The CFF also helps at a personal one-on-one level by providing free resouces to help me, a mother of a child with CF, navigate insurance issues and also help me work with educators to create a successful 504 for Caroline's CF needs.
There are counteless other ways the CF Foundation has made a difference in our lives but mostly, I firmly believe The CF Foundation is the way God is making a path for a cure for CF.
Thank you for your love and support!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.