There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Â Our family was rocked 9 years ago when Jenna was diagnosed with Cystic Fibrosis.Â None of us really knew what the disease was other than that it affected the lungs.Â We have learned that it also affects the digestive system, and every organ in the body.Â The disease is potentially fatal and one out of twenty five people have it.Â Basically, a bad gene produces mucus that clogs the lungs and stops the pancreas from breaking down food.Â Life threateningÂ bacteria grow in the mucus.Â Life expectancy right now is forty one
Â Â Â Â Most people are diagnosed at birth or at an early age.Â Jenna wasn't diagnosed until she was eight.Â She got a blockage in her intestine that they weren't too concerned with.Â After running the protocol of tests, she was diagnosed with CF.Â It was shocking because she didn't have the "normal" symptoms that we associated with CF.Â She now has a strict regimen of medicine and treatments that she has to do for the rest of her life.Â She does 2-3 breathing treatments a day. She has to do a nebulizer 2-3 times a day.Â She takes enzymes every time she eatsÂ to help her get nutrients from her food.Â She is on a high calorie diet to help her grow and takes special vitamins.Â She is frequently on antibiotics.Â SheÂ has to regulary take laxatives.Â Â She goes to Children's Hospital every 3 months for checkups and tests.Â She is a trooper through it all, and doesn't let it stop her from living a normal life.Â She goes to school, plays soccer, and is always going to friends' houses.Â We are all very proud of her!
Â Â Â Â Since Jenna's diagnosis, the family has become very involved in fundraising to help research with this disease.Â The medicine, treatments, and research are very expensive.Â They have come a long way and are getting closer to a cure!Â To put it in perspective.....life expectancy over the last 30 years has doubled. Â The news just keeps getting better . Â Patients with double 508 mutations have started their corrector drug. Patients with a single 508 mutation, which is Jenna, are starting to get theirs. Jenna will hopefully have hers by the end of the year. This will stop the progression of the disease. Itâ€™s huge! So close to getting to get that cure!
Â Â Â Â This research is what keeps our hopes up and fuels us to keep trying to raise money to help the fight.Â We truly appreciate all the help and support that people generously give us.Â Keep Jenna, her family, and other CF patients in your prayers.
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