Once again the Great Strides walk will be a virtual event and this year it will be celebrated on May 15, 2021. I hope you'll still join us & hopefully we can have a friends/family walk day when the world goes back to normal!
It's been a great year for Annie & Philip! They have continued the new CF modulator Trikafta and they are both thriving! They both have had a reduction in their daily cough and other symptoms and family and friends have commented on the noticeable improvement. They still need to do their daily treatments but there will be trials to see if some parts of their daily routine can be modified.
To help promote & fund this promising research we are once again participating in the Great Strides walk. Great Strides is the CFF’s largest and most successful national fundraising event. This year, we’re walking in the 2021 Virtual Great Strides Walk on May 15, 2021.
Because of the support generated by events like the Great Strides Walk, the progress made by the CFF in recent years is truly amazing. The work to individualize treatment to correct the specific gene defect has led to some very successful treatments for many CF patients and has also been expanded to help other genetic diseases including cancer. CFF researchers have also been working with gene editing and when perfected it will actually cure the disease. There is not yet a timeline for gene correction therapy but the CFF Is working in conjunction with many other researchers with the goal of curing many genetic diseases.
We truly appreciate all the support, prayers, and good wishes we have received from all our family and friends, and we would be honored to have you walk with us on May 15, 2021. Thanks to everyone for contributions of any kind.
Dave, Shelly, Annie & Philip Waymeyer
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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