Hello family and friends,
Did you know there are approximately 30,000 Americans living with cystic fibrosis?. Our daughter Jenna is one of them. Jenna was diagnosed 8 years ago, but doesnt let her disease get her down. She stays very active with soccer and school activities. She has many friends and family that help her through this.. She takes her meds and does her treatments like she is suppose to. We are getting ready for our local walk this year and was hoping with all your support and donations we can make it a successful one. The walk is on May 19th at 1 pm at Liberty Park, and invite anyone to join us. . If you can not join us a donation would be appreciated. Our team continues to be the biggest team for participation.!! You can run, walk,crawl or just come out to the park.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease.. The news is getting very exciting .Jenna is hoping for her corrector drug by the end of the year! So clearly the money raised is definately making a difference.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.We hope to see you there! We want to thank you from the bottom of our hearts for all the support! We won't stop till we find a cure!!!
Tony, Ginger, Justin and Jenna Puente