My Great Strides Story
With no cure to this terminal, genetic disease called Cystic Fibrosis, many families look towards the CF Foundation for support, resources and overall care management. Sarah was born 17yrs ago, & our family was given a life expectancy in her mid 20's. Yet today, that number has increased & continues to increase with the overwhelming Strides of research, knowledge & support. Researchers have developed medications that can open the defective cells that temporarily block the body's natural functions. Very effective for some who carry to correct mutations, yet temporary, & often come with ugly side effects for some. Even though this disease wants more from Sarah's body, Sarah Strides to live her best life. She is a gymnast for her High School Team, holds a part time job, volunteers with special needs organizations, & is surrounded by the most amazing friends. Please support our family as we fight for our daughter & the thousands of others fighting this disease which has no cure.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.