Dear Friends and Family
We are beginning our 12th year of Great Strides fundraising for Cystic Fibrosis. Every year has been marked by amazing progress and this year has exceeded all expectations. A new drug, Trikafta, was approved by the FDA ahead of schedule because of its positive results with 90% of the CF patients. Sadly this drug is not helpful to Lilly who has a rare form of this rare disease. We remain hopeful that the Foundation's motto CF means cure found for all.
Meanwhile Lilly has an outstanding academic record in 6th grade. She takes piano and dance lessons but loves riding horses the best. She loves all kinds of animals, her friends, and doing crafts.
CF was featured in a mainstream movie called 5 Feet Apart. All CF patients must remain 6 feet apart from each other always. Just as we are doing for the virus. It depicts a teenage lovestory between two CF patients and the challenges of remaining 6 feet apart.
This year Lilly has had to do more treatments in addition to her regular 3 breathing treatments each day, as well as, taking many life saving medications daily. Click to see a video made by her mother. You will learn more about her life and efforts to fund a cure. I think you will find it inspiring.
Donate by clicking the Donate to Ruth above.
Ruth and Hank Lapp