Please join us for the Great Strides walk on May 18, 2024.
It's been a great year for Annie & Philip! They have continued the new CF modulator Trikafta and they are both thriving!
To help promote & fund this promising research we are once again participating in the Great Strides walk. Great Strides is the CFF’s largest and most successful national fundraising event.
Because of the support generated by events like the Great Strides Walk, the progress made by the CFF in recent years is truly amazing. The work to individualize treatment to correct the specific gene defect has led to some very successful treatments for many CF patients and has also been expanded to help other genetic diseases including cancer. CFF researchers have also been working with gene editing and when perfected it will actually cure the disease. There is not yet a timeline for gene correction therapy but the CFF Is working in conjunction with many other researchers with the goal of curing many genetic diseases.
We truly appreciate all the support, prayers, and good wishes we have received from all our family and friends, and we would be honored to have you walk with us on May 18, 2024. Thanks to everyone for contributions of any kind.
Sincerely,
Dave, Shelly, Annie & Philip Waymeyer
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.