Traveling Waymeyers
The Great Strides walk is back! Please join us on May 18, 2024, at Sawyer Point for a return to the outdoor walk event!
It's been a great year for Annie & Philip! They have continued the new CF modulator Trikafta and they are both thriving as full-fledged adults! Annie is in year 3 at Northern Elementary as a kindergarten teacher. Philip is living in Jersey City, NJ and working at Prudential in data engineering. Annie & Philip are living life to the fullest thanks to the amazing progress in treatment largely funded by your donations to CFF!!
To help promote & fund this promising research we are once again participating in the Great Strides walk. This year, we’re walking on May 18, 2024, at Sawyer Point downtown. If you want to help Add Tomorrows for Annie & Philip here are two ways you can help:
You can register to walk as part of the Wacky Waymeyers team- it’s free! - but if we could get 50 walkers registered and each walker raised or donated $100 then we’d have $5000!
Go to http://fightcf.cff.org/goto/wackywaymeyers
Click on the “Join Michelle's Team” box under the picture and register to walk
You can donate to the Wacky Waymeyers’ team online:
Go to http://fightcf.cff.org/goto/wackywaymeyers
Click on the “Donate to Michelle” box or click on the team name: “Wacky Waymeyers” and donate to the kids or another walker
Any amount you can donate is greatly appreciated!
The progress made by the CFF in recent years is truly amazing. The work to individualize treatment to correct the specific gene defect has led to some very successful treatments for many CF patients and has also been expanded to help other genetic diseases including cancer. CFF researchers have also been working with gene editing and when perfected it will actually cure the disease. There is not yet a timeline for gene correction therapy but the CFF Is working in conjunction with many other researchers with the goal of curing many genetic diseases.
We truly appreciate all the support, prayers, and good wishes we have received from all our family and friends, and we would be honored to have you walk with us on May 18, 2024. Thanks to everyone for contributions of any kind.
Sincerely,
Shelly, Dave, Annie & Philip Waymeyer
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.