It’s that time of year again! The annual Great Strides Walk in Suwanee, Georgia is quickly approaching on May 18, 2019. Once again, I am asking for your support to help raise money for CF research. I would like to thank everyone who donated last year and has assisted in helping the CF Foundation to find a cure!
I graduated with a B.S. in Nuclear and Radiological Engineering from Georgia Tech in December of 2018. I enjoyed my time at Tech, and I will have fond memories of it for the rest of my life. I am honored to say that I will begin my graduate studies in Aerospace Engineering at Stanford University this fall. I decided that a degree in Aerospace Engineering would open up many more job opportunities for me in my field of interest, and I was lucky enough to be admitted to Stanford’s renowned aerospace program. I am excited to start this new chapter in my life, and I hope that living in a new place helps me grow even more as an individual, both inside and outside the classroom.
I am happy to report that my CF health has been excellent this year! My lung function this past year has been consistently around 100% of expected for my body weight, so I am very pleased with my numbers. In addition, I have gained some weight, meaning my BMI is in a healthier zone than it ever has been before. I continue to use the nebulized treatments hypertonic saline and Pulmozyme. Kalydeco, a new drug which is a product of research of the CF Foundation, continues to greatly benefit my life. It is proof of what your donations can do. Furthermore, I have recently begun using a new airway clearance system called the Monarch. This system is wireless vest therapy. If I need to, I am able to walk freely around the house while receiving the treatment. Without the money raised by the CF Foundation every year, new technology like this will never become available to CF patients like myself. Largely with the help of Kalydeco, I have not been hospitalized in 8 years. New drugs are going through drug trials daily, but this can only continue to happen if money is continually raised to fund research.
I would like your donations again this year to help fund the drug research that is going on now for all of the CF drugs in the FDA pipeline, including a drug similar to Kalydeco that will be accessible to all CF patients, not just the few with my mutation. Please visit the CF Foundation’s website at www.cff.org to read about all the new and exciting things going on with the CF research. At least 90 cents of every dollar goes directly to research.
Please make a donation on the CF Foundation website at www.cff.org, or you may send a donation in the mail to my home address: 3855 Moon Shadow Way, Buford, GA 30519.
On behalf of Andrew’s Angels, we hope and pray that someday CF will stand for CURE FOUND!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.