It’s that time of year again! The annual Great Strides Walk in Suwanee, Georgia is quickly approaching on May 18, 2019. Once again, I am asking for your support to help raise money for CF research. I would like to thank everyone who donated last year and has assisted in helping the CF Foundation to find a cure!
I graduated with a B.S. in Nuclear and Radiological Engineering from Georgia Tech in December of 2018. I enjoyed my time at Tech, and I will have fond memories of it for the rest of my life. I am honored to say that I will begin my graduate studies in Aerospace Engineering at Stanford University this fall. I decided that a degree in Aerospace Engineering would open up many more job opportunities for me in my field of interest, and I was lucky enough to be admitted to Stanford’s renowned aerospace program. I am excited to start this new chapter in my life, and I hope that living in a new place helps me grow even more as an individual, both inside and outside the classroom.
I am happy to report that my CF health has been excellent this year! My lung function this past year has been consistently around 100% of expected for my body weight, so I am very pleased with my numbers. In addition, I have gained some weight, meaning my BMI is in a healthier zone than it ever has been before. I continue to use the nebulized treatments hypertonic saline and Pulmozyme. Kalydeco, a new drug which is a product of research of the CF Foundation, continues to greatly benefit my life. It is proof of what your donations can do. Furthermore, I have recently begun using a new airway clearance system called the Monarch. This system is wireless vest therapy. If I need to, I am able to walk freely around the house while receiving the treatment. Without the money raised by the CF Foundation every year, new technology like this will never become available to CF patients like myself. Largely with the help of Kalydeco, I have not been hospitalized in 8 years. New drugs are going through drug trials daily, but this can only continue to happen if money is continually raised to fund research.
I would like your donations again this year to help fund the drug research that is going on now for all of the CF drugs in the FDA pipeline, including a drug similar to Kalydeco that will be accessible to all CF patients, not just the few with my mutation. Please visit the CF Foundation’s website at www.cff.org to read about all the new and exciting things going on with the CF research. At least 90 cents of every dollar goes directly to research.
Please make a donation on the CF Foundation website at www.cff.org, or you may send a donation in the mail to my home address: 3855 Moon Shadow Way, Buford, GA 30519.
On behalf of Andrew’s Angels, we hope and pray that someday CF will stand for CURE FOUND!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.