Charlotte changed our world forever when she joined our family on Sunday, September 1, 2019 and on Tuesday, September 10th - we received the confirmation of the diagnosis that has given us a whole new perspective on life.
Charlotte has cystic fibrosis, a rare, genetic disease, that increases her chance of persistent lung infections, causes difficulty in food digestion and will limit her ability to breathe over time.
Donations to the Cystic Fibrosis Foundation go directly to research and programs that will help prolong and improve Charlotte's life and hopefully cure CF. In just our past few months we have already benefitted greatly from much that the foundation has to offer and are so thankful for their support.
By joining our Great Strides team and/or making a donation, you will be showing your support in our fight to end CF. Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.