Thank you for joining our family as we help Lucas fight against cystic fibrosis – together with you, we can add more tomorrows for Lucas.
On September 15, 2017 Caio and I became parents to an exceptional, loving, creative, caring baby boy, Lucas. When we learned that Lucas had cystic fibrosis a few weeks later, we decided we were going to fight hard to make sure Lucas has a long and wonderful life, full of the same love and joy that he brought into the world.
It's been an incredible two-year journey supporting Lucas in his fight against cystic fibrosis. From clinic visits and hand wipes, to swallowing pills, eating high-calorie diets and just being a kid - Lucas teaches us every day to just keep smiling, no matter what.
With a smile, Lucas willingly: swallows his own enzymes, starts breathing treatments by himself, reminds us when we forget to wash his hands before eating, removes his shoes before entering the house and takes his daily concoction of medicines and vitamins, then gives us a 'high five' once he's finished.
We are so proud of the many ways he's learning to care for himself, but we know that some of the things Lucas is learning is not typical for a two-year-old, nor should they be. This year has been a great year for the CF community - including the FDA approval of Trikafta, a miracle drug. But Lucas is still not old enough to take it. We are hopeful Trikafta will help Lucas, but the drug only works for one of Lucas mutations. In addition, it's only addressing part of the problem CF causes. Infections are another concern as Lucas gets older. We need better and more powerful antibiotics and treatments for bacteria and other antibiotic-resistant superbugs. And the good news is that these drugs are being developed right now.
We Stride to raise funds that will help us get closer to cure, get better drugs, medicine and treatments to patients who need it most, and to one day, end Lucas regimen of:
Taking hundreds of pills per month: Including enzymes before eating any snacks or meals, to stay healthy. Sometimes more when he's sick.
60-120 minutes of Airway Clearance per day: Starting the day each morning, and going to be every night, doing rounds of airway clearance therapy – and every 4 hours when there’s a cold. Lucas wears a vest, connected to a large machine that will shake to help move the mucus out of the lungs. We must travel everywhere with this.
Being 'Always On' to avoid germs: For an exploring and curious toddler, it means being rigorous about washing hands, eating food that’s been properly washed and clean, wiping down public spaces at airports and parks – and being an advocate for people he is around who don’t have the same standards of cleanliness.
A life expectancy: This is the reality Lucas will face every day – it is a number that we refuse to define our son, and it is a number we hope we can keep raising with your help.
Come join us at Great Strides and walk to celebrate the amazing progress made by families, doctors, researchers and scientists – and how we can keep raising this number together. Support TEAM LUCAS by donating or participating in our Great Strides Walk to help Lucas live a long and wonderful life. Specifically, here's how you can help
1. To walk with us at the event: click on the 'Join our Team' button and select 'walker'. From there you can donate and/or start your fundraising. Joining our team is free and does not require a donation or fundraising, however, fundraising IS encouraged! The more resources we have for research the better!
2. Can't attend the walk but still want to support and donate: Click on the 'Join my Team' button and select 'virtual walker'. You guys are our online force who are driving donations in your community and diligently bringing in money. Once you register you will then be given a link that you can share with friends and family. All donations are tax deductible!
3. Help share Lucas story with friends and on social media: Sharing Lucas journey and educating others is one of the most impactful things we can do. We’ve come a long way, but cure is still needed and when you can spread the word by sharing a personal story – it’s more impactful!
For ALL walkers and virtual walkers who gather donations from friends, co-workers and family in the amount of $100 or more - you will receive a Great Strides T-shirt.
Thank you for the constant prayers, encouraging messages, hugs and thoughts. We know it takes a village. Your support and fundraising dollars are laying a strong foundation of support for Lucas to continue to fight and live a long and wonderful life.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.