Team Lily

Since birth, Lily was diagnosed with Cystic Fibrosis (CF) - a rare, genetic, life-shortening disease that makes it difficult to breathe. On the cusp of turning 2, Lily has developed into an extraordinary little girl with a big personality, happy heart, and enough love to move mountains. Despite all this, we often remind ourselves that she isn’t a typical toddler; although CF is sometimes described as an “invisible” illness, it still impacts her and the lives of 40,000 Americans on a daily basis. These are moms, dads, sisters, brothers, daughters, sons, cousins, friends and co-workers who struggle every day just to breathe.

The advancements in the CF community have been tremendous over the past couple of years, but there is still no cure. While we are so grateful for the modulators that temporarily fix her defective gene, they are only temporary. The goal is to find a permanent cure.

If you’d like to join Lily and our life’s purpose of conquering this disease, please consider joining her Great Strides team and donating to this wonderful cause. We are endlessly grateful for all of the support Lily has received in her CF journey thus far and will continue fighting until a cure is found.