Hi, my name is Caroline Rivers and I have CF. Although CF affects my life every day, I still do my activities I love the most! I play Tennis almost every day of the week along with playing with my friends outside. I also enjoy drawing, painting and playing the piano. You might ask, how can CF affect your life? Well, I do treatments to help me two times every day for 1 hour each. Even though these treatments help me, they limit my free time. CF is Cystic Fibrosis but shorter, or, as we like to call it, 65 Roses. (There is a great story about that. Ask me sometime!) All my life I’ve had this condition but still, I strive to stay alive and healthy. Tennis helps work out my lungs to great amounts while drawing and sketching allows me to show my perspective of art. Lastly, my piano skills are shown through concerts and I am especially looking forward to the upcoming piano recital in May! This summer I will be competing on our neighborhood swim team! I love to be active outside, mostly playing tag with my friends or tennis matches on Saturdays.
CF is in 30,000 human bodies around the United States. Even though it might not sound that big I can’t even be around other CF patients. This is because you can share germs to each other when near enough. To make me stay alive I must do meds and treatments. The type of medicine I take is called Kalydeco. It helps my body to make salt. I need salt because I need to get rid of mucus which is made in my body, the main reason what CF is. Treatment is a type of vest I wear to make me shake up and down. This makes the Mucus break and come out of my body. While I do treatment, I watch my iPad or do my homework. The treatment usually lasts 45 min or longer, causing time circumstances troubled. Specially in the morning before school. During my treatment I have 2 other meds I have to do with breathing. One has salt water. The other has another medicine.
Please come walk with me Saturday 5/18 to help me breathe. It will be a lot of fun!
Love,
Caroline :0)
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Updated July 5th, 2023
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