The Peanut Gallery

This year Caroline is celebrating healthy lungs, new therapies, less medication and more time living life! 

“Once again... I'm alive, which is a big challenge, because it means I survived the high school hallways with the kids/giants that are ten feet tall. Anyways, thanks so much for helping towards research for CF. Due to all these new treatments, I get to continue to be with my g-pigs Bumble (Bumbito or Pigoo) and Mylo (Memo), ride horses, be with my best friends, and read an amount most people would consider too much. So to everybody I would like to say "danke!"

- Caroline aka Lacky aka Taroweena :)

Daily Life With CF

Caroline has had a lot of positive changes in her daily routine this year thanks to her good health! After 7 years, she was able to remove her GTube button and is managing her high calorie diet and weight gain by herself. We are so proud of her hard work. Consistently healthy lung function has led to two inhaled medications being moved to an "as needed" status. She also received a new airway clearance system called a Volara that gives her effective treatments in only 30 minutes a day. Less time hooked to a vest a more time living life!  She continues to take Trikafta to treat the CAUSE of Cystic Fibrosis. While Trikafta seems to keep her lungs/weight stable, we are hoping newer treatments in the pipeline will be even more effective. We are thankful for her health, but there is still work to do!

Cystic Fibrosis Foundation Continues to Fight For a Cure

The CF Foundation started a major initiative called the Path to a Cure, an ambitious research agenda to find a cure for ALL people living with CF despite their mutation. $500 million dollars will be allocated to this effort through 2025. The excitement surrounding advancements in the treatment of CF is accelerating the progress for drug discovery and development. Thanks to CFTR modulators like Trikafta, CF patients are seeing improved lung function and weight gain, starting families, pursuing careers and even coming off lung transplant lists. 

The Future Is Bright

Caroline is now a freshman and is spending more time thinking about what her future looks like. It feels good to hear her talking about the family and career she hopes to have one day.  Your support will help those dreams become a reality. 

Thanks for continuing to fight with us-
Team Toole (Caroline, Katy, Justin, Mya, Ben, Bumble and Mylo!!!!)