Our Great Strides Story
On November 16, 2018, my family and I recieved a call that would change our lives forever... Our sweet Avery - who was just three weeks old - was diagnosed with Cystic Fibrosis, a form of lung disease that officially gave her a "life expectancy". And six weeks later, she would be admitted to the hospital for a 19-day stay after getting her first "cold".
The first year of her life was full of of many doctor visits, new medications, hours of manual chest physiotherapy and fear.
Today, Avery is five years old with over 1,859 hours logged in her airway clearance machine. She is happy, healthy and lives a life I wish I knew she would have had when she was first diagnosed. All of these things were made possible because of medical advances that come directly from money raised by the Cystic Fibrosis Foundation, Great Strides and families/friends just like mine.
Join our team and walk with us so we can find a cure for all people with cystic fibrosis. Help us end this disease!
To become a team member, click the “join this team” button. Once you register, it’s easy to like, follow, share, donate, fundraise or walk with us!
Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by their disease. We can’t wait for you to join us!!!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.