Soon after Maya was born, she was diagnosed with Cystic Fibrosis (CF), which is a rare, genetic, life-shortening disease that impacts every organ in the body and makes it difficult to breathe. There is currently no cure for CF. Since Maya's diagnosis, we've learned more and more about this disease that we previously knew nothing about, but we also have learned of all the advancements that have been made in helping those affected by CF. The life expectancy of someone born with CF has doubled in the last 30 years. As we've learned about all the time, effort and resources poured into these advancements, we have been overwhelmed with gratitude. We are grateful for the countless others who came before Maya and have fought passionately to advocate, fundraise, research and develop medicines. We're grateful for Maya's dedicated care team who treat her and our family with love and compassion as we navigate Maya's daily treatment plan. We're also extremely grateful for the Cystic Fibrosis Foundation and their imprint on all of these medical advancements.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. We have seen firsthand how Maya has benefited from this progress and it has given us hope for her future. We are fortunate that her specific gene mutations qualify for one of the modulator therapies that are designed to help address the impacts of CF on her body. Despite this progress, many people with CF do not benefit from these existing therapies either because their disease is too advanced or because there hasn't been a drug developed yet that their specific gene mutations will respond to. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them and for Maya.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.