Our beautiful, spunky, happy daughter Lily was diagnosed with cystic fibrosis since birth. CF is a genetic disease that impacts the lungs and other organs, causing Lily to face unique medical challenges with daily treatment and medications to keep her healthy.
Thanks to the fundraising efforts before us, Lily was qualified to start a revolutionary medication at just 4 months old. While great progress has been made, there still remains no cure.
We’ve come so far, but there’s still so much work to do. We will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support Lily and the other 30,000 Americans living with cystic fibrosis!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.