2023 finds Hayden doing very well (knock on wood!!). Not only has he finished his 2nd year at GA Tech with all A's, but he is traveling in the states and abroad for his summer job.
These are milestones that I wasn't really sure Hayden would reach when he was diagnosed with CF at 7 days old. The future his doctor described was bleak-medications, breathing treatments, hospital stays, and a shortened life span of only mid-30's. To say the least, it was heart breaking to hear.
Well guess what? Hayden has defied the odds, and his daily life is pretty similar to other "healthy" teens. Why? Maybe luck, or maybe because he is diligent and is committed to keeping himself healthy by taking his meds and doing his breathing treatments.
Hayden takes at least 25 pills every day (breakfast=10, lunch=5, snacks=4, dinner=7), and he spends at least 1 hour every day doing airway clearance (nebulizer meds and vibrating vest clear thick, sticky mucus from his lungs; BTW, treatments double if he has a cough).
What I know without doubt-Hayden has defied the odds because he has benefited from innovative medications made possible by donations to the Cystic Fibrosis Foundation.
Fundraising for the CF Foundation on behalf of "Hayden's Team" continues to be critical because Hayden still needs a cure. Hayden needs your donation today.
When you donate to the CF Foundation you give:
1. Funding for amazingly successful medical progress that has lengthened the lives of people living with CF (the average life expectancy of a child born with CF has doubled in the last 25 years due primarily to drug development sponsored and overseen by the CF Foundation!)
2. Funding for innovative, groundbreaking treatments that improve the lives of people living with CF (there are over 30 drugs and therapies in various stages of clinical trials!).
3, Hope (see that whole mid 30's thing above, ah, NOPE! NOT ACCEPTABLE. Am I right, or am I right?).
4. One day, a cure (this is where the blowing horn emoji goes!)!
If you can spare $5, it will make a difference (and I will be grateful). Will you make a donation today?
And if you want to show your support by walking "with us" virtually on May 20, Hayden's Team always has room for more teammates (or sit on your couch, deck, porch and "walk with us" in spirit; that works too).
We need you in this fight with us! Thank you for your support!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.