Hoping and Praying you are all feeling healthy and happy!!
It has been a crazy year and seems like it flew by!! It was just yesterday we were walking virtually and joining together to raise money for Cystic Fibrosis.
Well, thanks to COVID.... the Great Strides Walk to cure Cystic Fibrosis is virtual again. We miss all of you and were really hoping to be able to see everyone this year! Although VERY disappointing....We are still fighting to find a cure and could use your help!!
Ryan has been doing so well on the new drug TRIKAFTA and we are sooooo THANKFUL for that!!!! Although new medications and treatments are improving the quality of life for many CFers...there is still no cure!! Every year when Great Strides comes around, I hear so many stories from the CF community.....some happy and some sad. I am reminded that this fight is NOT over!! Real progress has been made in the search for a cure, but the lives of people with CF are still cut FAR TOO SHORT!
Let's find a CURE for this devastating disease!!
In 27 years, we have raised thousands and thousands of dollars and I truly believe all of the advances they have made to find a cure for CF is because of friends like you!!! Our team has always been filled with so much love and support that there will NEVER be any words to express our gratitude!!!
Help us reach our team fundraising goal of $5,000 by donating to our team!! Your support will help add "tomorrows" to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. All donations are 100% tax deductible!
Thank YOU for all of your love, support and prayers!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.