Thank you for joining Team Lucas to help Lucas fight against cystic fibrosis!
Lucas teaches us every day to just keep smiling, no matter what. With a smile, Lucas willingly: takes multiple breathing medications a day, swallows 6-7 pills at a time, puts on a masks when going inside among crowds, reminds us when we forget to wash his hands and take his enzymes before eating, does his vest "Shake Shake" and breathing treatment morning and night with no compliants or fights, removes his shoes before entering the house and takes his daily concoction of medicines and vitamins, then gives us a 'high five' once he's finished.
How does your support help Lucas?
We have come a long way since Lucas' diagnosis in 2015. Since then, the life expectancy of a child born with CF today is predicted to live into their 40s and 50s. Still, that is not without many medications, antibiotics, daily therapy, enzyme replacement therapy and too many hospital visits to count. We want Lucas to have a full life, with no limits. We want Lucas to plan for his career, retirement and grandchildren. New treatments to improve the quality of life and soon - a CURE - are in the labs today. With your support, we can help fund these treatments and therapies so one day CF can be a disease of the past.
We know there is so much going on in the world today. We want to make you something from Lucas as part of your donation, so you can remember who you're walking for and where your donation goes. So this year, we'll be making more Lucas bracelets for you to wear as a reminder. Make sure to leave your mailing address and email in the form!
Please join us for a Walk on May 21 at 8:30 AM and wear your Lucas bracelet!
We'll finally be joining in person to walk for a cure at Suwanna Town Center and we want you to join us and wear your bracelet! If you can't make it, we'd love to see you virtually. Anyone who donates $20 or more will receive a handmade bracelet from the Borges family as a token of our apppreciation - so please make sure to leave your name and mailiing address in the form.
I want to join or donate, what do I do next? Join Team Lucas Great Strides Walk on May 21 at 8:30 a.m. and wear your bracelet, by clicking on the 'Join our Team' button and select 'walker'. From there you can donate and/or start your own fundraising page for Lucas. Joining our team is free and does not require a donation or fundraising, however, fundraising is encouraged. And any donation of $20 or more, we will ship you a handmade bracelet - so PLEASE be sure to leave your name and address. Or you can order one on our website.
I can't attend the walk but I still want to support and donate! Click on the 'Join my Team' button and select 'virtual walker'. We have close friends and family all over the US and the world: Brazil, Colombia, France, UK, EU - who are all driving donations and awareness in their communities. Of course we'd love to see you during the walk, but it's ok if you can't attend. We'll be sending out information about a virtial Zoom kickoff on May 21, so you can kickoff Team Lucas. Remember, anyone who donates over $30 will get a homeamde bracelet from Lucas, so you can remember who you're supporting and who we are all fighting for.
Help share Lucas story with friends and on social media! Sharing Lucas journey and educating others is one of the most impactful things we can all do - especially during these pandemic times. We’ve come a long way, but cure is still needed. By spreading the word and sharing a personal story – you create more of an impact not just about CF but about everyone who is immune comprimised and still waiting for a vaccine.
We have hope Lucas will see a cure in his lifetime. Thank for your continued support and fundraising as we fight for a cure!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.