Team James Alexander is at it again this year - we're making strides towards a cure! James Alexander was diagnosed with a genetic, terminal disease called cystic fibrosis (CF) on November 11, 2016.
As new parents, the Cargals were devastated. What was James' prognosis? How long did he have? The unknown of their future has, and at times continues, to be a struggle for this family. Thankfully, fast forward to today, James continues to thrive because of the support of people like you who generously donate to the Cystic Fibrosis Foundation. Without your donations, the life saving medical advancements the Cargals are experiencing would not be possible.
What is cystic fibrosis? Cystic Fibrosis is a life-threatening, genetic disease caused by a defective gene that causes a thick buildup of mucus in the lungs, pancreas and other organs. In the lungs especially, the mucus clogs the airways and traps bacteria which lead to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients causing those with CF who are pancreatic insufficient to rely on enzymes at every meal. CF affects 30,000+ Americans. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
We walk for James and everybody else battling this devastating disease every day. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can walk along side and make a donation. You can also support our team's fundraising efforts, if you'd like.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
If you're unable to walk for a cure, consider joining our team virtually or donating. Know that your donation goes towards research, which brings us closer and closer to helping those with CF live a long and full life, in addition to the care centers that are so vital in battling this devastating disease.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.