2022 finds Hayden doing very well (knock on wood!!). It is hard to believe he will be finishing his freshman year at Georgia Tech!
These are milestones that I wasn't really sure Hayden would reach when he was diagnosed with CF at 7 days old. The future his doctor described was bleak-medications, breathing treatments, hospital stays, and a shortened life span of only mid-30's. To say the least, it was heart breaking to hear.
Well guess what? Hayden has defied the odds, and his daily life is pretty similar to other "healthy" teens. Why? Maybe luck, or maybe because he is diligent and is committed to keeping himself healthy by taking his meds and doing his breathing treatments.
Hayden takes at least 25 pills every day (breakfast=10, lunch=5, snacks=4, dinner=7), and he spends at least 1 hour every day doing airway clearance (nebulizer meds and vibrating vest clear thick, sticky mucus from his lungs; BTW, treatments double if he has a cough).
What I know without doubt-Hayden has defied the odds because he has benefited from innovative medications made possible by donations to the Cystic Fibrosis Foundation.
Fundraising for the CF Foundation on behalf of "Hayden's Team" continues to be critical because Hayden still needs a cure. Hayden needs your donation today.
When you donate to the CF Foundation you give:
1. Funding for amazingly successful medical progress that has lengthened the lives of people living with CF (the average life expectancy of a child born with CF has doubled in the last 25 years due primarily to drug development sponsored and overseen by the CF Foundation!)
2. Funding for innovative, groundbreaking treatments that improve the lives of people living with CF (there are over 30 drugs and therapies in various stages of clinical trials!).
3, Hope (see that whole mid 30's thing above, ah, NOPE! NOT ACCEPTABLE. Am I right, or am I right?).
4. One day, a cure (this is where the blowing horn emoji goes!)!
If you can spare $5, it will make a difference (and I will be grateful). Will you make a donation today?
And if you want to show your support by walking "with us" virtually on May 15, Hayden's Team always has room for more teammates (or sit on your couch, deck, porch and "walk with us" in spirit; that works too).
We need you in this fight with us! Thank you for your support!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.