As most of you know, Aspen was born March 29, 2013 and was diagnosed with Cystic Fibrosis on April 8th. He was in the hospital from April 1st until May 9th of 2013 due to an intestinal atresia and because he wasn't gaining weight. Since that time he has done better than the doctors predicted he would and we are SO grateful. The Lord has been so good to us to allow Aspen to flourish. He is approximately 42 pounds and 45 inches and doing great! CF is a progressive disease but we are doing ALL we can to keep this sweet boy healthy! Even Aspen's doctors are amazed at his progress. I believe in a CURE and I believe every $$$ we raise is making a difference in Aspen's life and all those with CF! Will you help us in helping Aspen to #Breatheeasy ?
Aspen is such a gift from the Lord! I never realized just how much JOY he would bring into all of our lives. He melts our hearts. He is funny and has the cutest crooked smile. He is precious as I'm sure you've seen on our Facebook pages. I sort of have a problem with taking pictures! ;)
Psalm 139:13 - "For you created my inmost being; you knit me together in my mother's womb."
We also know that God sees and God knows! Nothing catches God off-guard or takes Him by surprise. God, knowing all things beforehand, has reminded us through His Word that He is in control and we are clinging to that promise!
It was my prayer for 2019 that we would REJOICE in how well Aspen is doing but not become too comfortable with his diagnosis that we cease to pray for a miracle cure and we have done just that! We know that the "toddler years" are often called the "quiet years" because children with CF at his age are generally healthy (although we have read of MANY that are already on a feeding tubes, have to be admitted to the hospital and having a difficult time). We pray for these children but it also makes us grateful that Aspen is doing so well this far.
Research into a cure is not funded by the government, as it is with some genetic diseases. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to the team. Any amount you can donate is greatly appreciated!
"Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. To learn more about CF and the CF Foundation, visit www.cff.org." Please think about joining our team and help ADD tomorrows!
Please support me!
1) Praying for our family. Your prayers and encouragement mean more than we can say!
2) Join us for a TEAM Aspen virtual event on Saturday, May 15th, 2021! More info to come!
3) You can do the above two things AND/OR contribute to our fundraising as well. You will have the choice of contributing towards our $20,000 team goal OR starting your own "team within our team" to raise money on your own for TEAM ASPEN. Please consider setting your OWN goal... $200 or more and asking your friends and co-workers to support this worthy cause! Imagine how much much awareness we could spread for Cystic Fibrosis if everyone shared this status and was willing to raise $200 for TEAM ASPEN!
As we look at our precious Aspen we are so grateful for his life. The Lord has been SO good to fill us with HIS PEACE this year and to allow us to enjoy and love him and not worry too much about the future. As Aspen grows, the thought of him struggling becomes harder and harder to think about. There is so much exciting research being done right now. We would love your help in helping Aspen to have many more tomorrows.
We love and appreciate you all!
** Just in case you are in the reading mood... you can read Aspen's blog at the following link:
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.