This year JW turned two years old and is now eligible for a prescription drug that can greatly improve his quality of life living with Cystic Fibrosis. Without past donations, medicine like this would not be possible today.
Cystic Fibrosis is a rare, genetic disease that causes persistent lung infections and limits the ability to breathe over time. Generous donations that fund research and medical development have improved the lives of those living with CF and give hope that healthy, long lives are possible. We are so grateful for our care team in Atlanta and the Cystic Fibrosis Foundation.
While we’re ecstatic for JW to be able to take this drug, and thankful for the countless hours of research and funding that went into creating it, we won’t stop fund raising until a cure is found.
By donating and “walking” with us in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community. Although Great Strides is virtual this year, we continue to feel a deep sense of support and strength from friends, family, and all those working in the fight to cure CF.
Your participation and support will help us get one step closer to ending this terrible disease. Please join us in making CF stand for Cure Found!
Thank you! Jeremy, Katie and JW Buffone
Please visit cff.org to learn more about this life-threatening disease.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.