Hoping and Praying you are all feeling healthy and happy!!
It has been a crazy year and seems like it flew by!! It was just yesterday we were walking virtually and joining together to raise money for Cystic Fibrosis.
Well, thanks to COVID.... the Great Strides Walk to cure Cystic Fibrosis is virtual again. We miss all of you and were really hoping to be able to see everyone this year! Although VERY disappointing....We are still fighting to find a cure and could use your help!!
Ryan has been doing so well on the new drug TRIKAFTA and we are sooooo THANKFUL for that!!!! Although new medications and treatments are improving the quality of life for many CFers...there is still no cure!! Every year when Great Strides comes around, I hear so many stories from the CF community.....some happy and some sad. I am reminded that this fight is NOT over!! Real progress has been made in the search for a cure, but the lives of people with CF are still cut FAR TOO SHORT!
Let's find a CURE for this devastating disease!!
In 27 years, we have raised thousands and thousands of dollars and I truly believe all of the advances they have made to find a cure for CF is because of friends like you!!! Our team has always been filled with so much love and support that there will NEVER be any words to express our gratitude!!!
Help us reach our team fundraising goal of $5,000 by donating to our team!! Your support will help add "tomorrows" to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. All donations are 100% tax deductible!
Thank YOU for all of your love, support and prayers!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.