Wes Robinson

We have kept this very private until now, but this cause is too important to sit idly by, so I would like to please ask for your support.  Our beautiful 9-month-old Lily was born with a genetic disease called cystic fibrosis for which there is no cure.  CF is a progressive disease that affects the lungs and other organs. Fortunately, Lily is doing great, and she is fortunate to qualify for specialized medication, but requires twice daily chest physical therapy. These treatments have been a game changer for people with CF.  For a person born now, the life expectancy has risen dramatically over the last few decades and patients are living fuller and healthier lives than ever before. Because of treatments now available over the last several years, we are extremely hopeful and optimistic that Lily will live a healthy, full, and happy life and be able to achieve whatever hopes and dreams she has for herself. However, not everyone qualifies for these medications and everyone's CF is different.  And no CF patient has access to a cure.  So there is still much work to be done.  We are incredibly grateful to all the medical professionals, champions of this cause, and benefactors who fought for those who suffer from this disease. We encourage you to consider supporting the Foundation and will match the first $1,000 to double your impact.  Thank you.