Cystic Fibrosis is a genetic disorder that affects the lungs and digestive system. Many patients with CF describe it as though they are breathing through a straw, whereas you and I can take full breaths. CF used to be a death sentence, with children always dying prior to age 5. Due to breakthroughs largely sponsored by the CF Foundation, it is now considered a life-shortening disease, although CF patients can live to middle age.
Many friends and family know that I am a carrier of Cystic Fibrosis and that my cousin is afflicted with this disease. I have been fundraising and volunteering with the CF Foundation since 2019. I am so proud to be involved with this organization, as 90% of the funds they receive is actually used, with only 10% held back to run the Foundation. Because of donations from the Foundation, my cousin Jeremy was able to begin taking a life changing drug last year.
I fundraise for CF because I want every CF patient to have their lives changed and extended through medical breakthroughs. I want kids born with CF to be born with a managable illness rather than a death sentence. And I want CF Families to be able to navigate our complicated heathcare system and be able to have access to the healthcare that they need.
I won't stop until CF stands for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.