I am so proud to call Addie my daughter. She may be little but she is STRONG. She has to take on so much more on a daily basis to keep her body functioning than most and she does it with a smile on her face. She is thriving and growing like a weed. She takes her treatments in stride and knows her medicine routines. She doesn't complain and is just such a happy kid. We are so thankful to her care team who manages her treatment and for all the support we receive from family and friends. It takes a village to raise our kids and we are thankful for ours! Cystic Fibrosis is only a part of Addie's story but is not what defines her. She is strong, courageous, beautiful and is going to accomplish some amazing things in her hopefully very long life thanks to donations made to the CF Foundation. She takes a modulator twice a day that works to attack the root cause of Cystic Fibrosis to help her body function as normal as possible to avoid any permanent damage to be created in her organs. We are forever indebted to the CF Foundation and the researchers working on these treatments to allow Addie to live as healthy and normal as possible. Please join us in the fight to find a CURE. We will not rest until CF stands for CURE FOUND.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.