*AN UPDATE FROM GRAYTON'S FAMILY:
Hello Grayton's Guardians!
A word from Grayton's parents, Melissa and JB Pinkston:
We want to thank all of you for your unwavering support of the past 6 years! We're looking forward to the opportunities that the CF Foundation has continued to give us to fight this life limiting disease.
Last year, Trikafta was announced which was a major drug therapy breakthrough that could potentially change Grayton's future. Well, we're getting closer and closer to that reality. Grayton's has had the opportunity to be a part of clinical trials since he turned 6 years old This is Hlast September. This has be HUGE for us. COVID was scary enough to stand in the face of, given that it attacks the lungs so abruptly. Think of Trikafta as the exact opposite in that it stands to improve his lung function for the rest of his life before he suffers through years of exhaustive chest therapies as others with CF have. Grayton's doctors at Children's Hospital of Atlanta are amazing and working hard to make this a reality for us very soon!
So what's left to do? Fundraise to the finish. Please sign up for your local Great Strides event! And when you sign up if there's not a Grayton's Guardians team in your hometown, please feel free to set one up... it's no more effort than signing yourself up to be a "walker". And if you'd like to, feel free to use the pictures attached or others you may have from races in the past to post on socail media with the #GraytonsGuardians. (Yes, we saw The Social Dilemma too and we're not on them as much as we used to be, but spreading the word has helped GG raise over half a million $$$ so it can't be all that bad, right? I mean, have you seen TikTok? Have you met Paul Holland??? Serious question.)
So please go here to see if there's a local team, or go here to set up a team. And if you're in Atlanta you're all set up thanks to Kelly Conner! The Atlanta walk will be Sunday, May 21st. PLEASE JOIN US AND WALK FOR A CURE!
We love you all so much and truly appreciate all that you have done to help us reach this milestone in Grayton's life!
JB, Melissa, Grayton & Ruby