We have so much to be thankful for, especially Grayton's health. We are overjoyed by support from our family and friends come together in support Grayton. All of your hard work is incredible...together, over the past several years we've raised over $500,000 through Great Strides, Peachtree Society, Xtreme Hike, and so many other fundraising events. There have been so many advances in new medicines and treatments. However, we won't stop until there is a cure for Grayton and others fighting CF. Join us on our fight!
A little update about Grayton. He just eradicated a bad bacteria that affected his lungs called pseudomonas. Only CFers can culture this bacteria from air, dirt, or water. YEP. Try keeping a 4-year old away from air and water and dirt?!! We worked with Grayton 2 hours a day doing nebulizers and vest treatments for the past 30 days. 60 hours the past month...good thing we had some extra time during the Quarantine.
Now for the grand finale...last year The FDA approved Trikafta, a breakthrough therapy to treat CF patients with the most common CF mutation. Trikafta is approved for patients 12 years old +. Clinical Trials are avail for ages 6-11 this year and Grayton is a viable candidate to take Trikafta next year. We're counting down the days! Trikafta will help Grayton live a longer fuller life with fewer CF complications. This is the medical breakthrough we've all been working, fundraising, hoping, crying, hugging, and loving so hard for Grayton and others with CF. YOU, Grayton's Guardians, have raised over $500,000 in the past 4.5 years. You have helped give Grayton the longer extraordinary awesome life he's meant to live! You have given Grayton and our family the best gift of all.....HOPE.
There has been so much development in the last few years and we want to continue that momentum by adding tomorrows to all of those living with CF. The real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support us by making a donation to our Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Ways to Help
To walk with us: click on the 'Join our team' button and select 'walker'. From there you can make a donation and/or start your fundraising. Joining our team does not require a donation or fundraising, however, fundraising IS encouraged! The more resources we have for research the better!
To donate: Search Grayton's Guardians Great Strides Atlanta 2020 your donation or select a team member from the list below. All donations are tax deductible.
To Help us fundraise: Click on the 'Join my Team' button and select virtual walker. You folks are our online force who are driving donations in your community and diligently bringing in money. Once you register you will then be given a link that you can share with friends and family.
Help Share Grayton's story: Telling Grayton's story is HUGE in educating others that a cure is needed and even better when a face is put with the cause.
Thank you for the constant prayers, hugs and words of encouragement for our family. Your support and donations are giving us everything our family needs-more memories with our Grayton.
Welcome to Grayton's Guardians, y'all!
Please support us!
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.