If you ask us what means most to our family, you will most likely be told your support of the Cystic Fibrosis Foundation is all we could ask for. Being involved with this organization has given Derrick and I a sense of hope we didn't think was possible when our son, James, was diagnosed in 2016. When our journey started, there were so many questions and unknowns about our son's future. Fast forward to today, and what seemed like an unachievable feat to have some type of option to help prolong James' life, is now within reach with a medicine called Trikafta, which James will be eligible for when he turns 6 in October.
If you're like us, you probably heard about Cystic Fibrosis (CF), but do you really know what it is? Let us break it down for you.
- Cystic Fibrosis is a life-threatening, genetic disease caused by a defective gene that creates a thick buildup of mucus in the lungs, pancreas and other organs.
- The thick mucus clogs the airways and traps bacteria which lead to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients causing those with CF who are pancreatic insufficient to rely on enzymes at every meal.
- CF affects 30,000+ Americans. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
We walk for James and everybody else battling this devastating disease every day. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can walk along side and make a donation. You can also support our team's fundraising efforts, just ask us how.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
If you're unable to walk for a cure, consider joining our team virtually or donating. Know that your donation goes towards research, which brings us closer and closer to helping those with CF live a long and full life, in addition to the care centers that are so vital in battling this devastating disease.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.