I will soon be walking in Great Strides Atlanta 2024! This will be our 12th year participating in Great Strides and we are so excited for another year! Please help me meet my fundraising goal by making a donation of any amount. Your generous gift will be used efficiently and effectively to help support vital CF research, medical, and educational programs.
Our 11 year old daughter Betsy was diagnosed with CF in utero in 2012. Betsy has a "mild" form of CF. However, "mild" for Betsy means four sinus surgeries, two 14 day hospital admissions, an hour of breathing treatments and percussive therapy every day, and a growing list of daily medications that she must be prepared to take for the rest of her life. She is 11 years old. Recently, Betsy was able to begin Trikafta after it was approved by the FDA for her age group. We have seen tremendous advances with these new treatments, but as with all new therapies, there are challenges yet to be discovered.
Betsy is a fighter, to say the least. When Betsy was in the hospital and prescribed an expensive, but truly beneficial CF specific medication, the CF Foundation was there for our family, offering guidance and direction, but most of all hope. Please help CFF to be able to help more families and fund more treatments! Making a donation is easy and secure! Just click the Donate button on this page to make a donation that will be credited to my fundraising efforts. Any amount you can donate will be greatly appreciated!
Cystic fibrosis is a devastating genetic disease that affects the lungs and digestive system. More than ten million Americans are symptomless carriers of the defective CF gene. Advances continue to be made in finding a cure, but your help is needed now -- more than ever -- to help keep up the momentum of this life-saving research. When the Foundation began in 1955, most children with CF did not live to see their first day of elementary school. Today, the median predicted age of survival for a person with CF is in the mid-30s. This is remarkable progress, but not good enough. We continue to lose precious lives to CF every day. To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.