Hello, Team Reid supporters!
Although we will not be able to walk in person this year (we'll be out of town), we still want to support Reid and everyone else who lives daily with Cystic Fibrosis. Reid has had an eventful year. He started Middle School this year, which he loves. And he also started Trikafta (which was made possible through fundraising dollars!), the new drug that came out to help with overall lung function, weight gain, etc! With that though, we knew that there were possible side effects with this drug. Over the past 6 months, Reid's lung function has remained high, and we're so thankful! But his liver levels have been elevated due to this drug. He also started with a hard blinking tic and we couldn't figure out what caused it. We stopped the Trikafta and the tic went away. His dr's seem to think that after being off of it for a few months, that we can slowly introduce it to his body (at half dose)and hopefully liver levels will stay stable and the tic will remain gone. We are praying that he can still take it as it has been so good for lung function!
Another hurdle we've had to face is Reid being pre-diabetic. This can happen with CF kids as they get older. Our goal is to keep the diabetes away for as long as we can. We've had to adjust his diet (this has been a hard task!), and up his exercise, water intake, etc. Next week, 5/5, he will put on an oral glucose monitor to wear for 10 days so that we can monitor his sugar levels to see what he's eating that's raising his sugar. This will help us to know what exactly to adjust in his diet.
Lung wise, this kid is doing great!! He continues to amaze us at each clinic by blowing higher and higher pft's (pulmonary function tests). He's gaining weight but also growing so much taller, so his bmi is still very low. So we have to keep the feeding tube for overnight feeds until the bmi can come up. I can't believe it but hes had his feeding tube for 6 years! He still does all of his treatments every day (Vest 2x a day, 2 aero chamber treatments, and a nebulizer treatment, along with all of his medications... Creon enzymes, Prevacid, Singulair, Albuterol, Pulmozyme, Flovent, Nasonex, and vitamins. And he never complains. He's really a great kid!
Please help us meet our fundraising goal by donating today! These fundraising dollars are helping him and others like him live a longer life. And that's priceless to us.
We can't thank you enough for loving us and supporting us!!
Mike, Mandy, Maya and Reid