Hi! I'm Holly Thrift!
I'm twenty-two years old and have Cystic Fibrosis. My FEV1 lung function is currently around 65% and I've had more surgeries, operations, and hospital stays than most people could ever imagine. Due to being so sick and so often, I've had to leave college and am luckily able to work part-time, when my health allows.
My biggest issue isn't my weight, or extremely low lung function like many CF patients, but it's my intense infections. I culture two strands of Psudemonas and a form of Staph infection in my lungs, and a strand of Psudemonas in my sinu's. My infections are extremely strong and are resistant to almost every antibiotic around. Due to this, they don't ever fully go away and I end up in the hospital for IV antibiotic treamtments roughly every 3-4months now for 3-5weeks at a time. The antibiotics I am on are also very dangerous for other parts of my body. I've gone into kindey failure twice from one of them. Another one, I am allergic to and have to be on IV benerdryl (aka the strongest form of sleeping meds a person could imagine) during each dose.
Since the CF Foundation doesn't get government funding, the only way to fund the scientest and new drug studies is from donations. This is where we all come in. Thanks to funding we have so many amazing treatments and medications avalible now, but they're not enough. Without funding the life expectancy will stay in the 30s. Without funding we won't have new antibiotics for people like me, who desperately need them. Without funding we won't learn of the better ways to treat hemoptysis. Without funding we won't be able to perfect the art of lung transplants. Without funding we won't be able to figure out gene therapy. Without funding we won't have a cure.
I pray for a cure. Together, we can make Cystic Fibrosis our bitch and make CF stand for Cure Found