I, for one, am happy to see 2020 and 2021 in the rear view mirror! We are looking forward to getting back to "in person" Great Stride walks!!
Caleb is doing very well. In June, 2021, he began taking Trikafta, the latest in the "designer drugs" for cystic fibrosis. He continues to take a Kalydeco in the evening, as well. The doctors were very pleased with the annual scan of his lungs in January, 2022 - there was essentially no change from January 2021. Caleb is in middle school this year, and is just full of energy. Other than a couple of mild colds, he has had a very healthy year. We remain encouraged that medical research on medications and therapies will stay one step ahead of Caleb, and he will enjoy a full and fruitful life.
Every year about this time, I am reminded that cystic fibrosis is an "orphan disease" - that is, there are not enough people that would take the medications or enjoy the therapies to enable drug companies to recover the cost of research - if it were not for organizations such as the Cystic Fibrosis Foundation.
Which brings me to the point of this letter to you. Again, I am asking for your help. For 12 years, many of you have been stalwart supporters of Caleb and his family; many you have come on our team in later years. We appreciate each and every one of you!!! As you can see, I have raised my goal to $3,500 - have to stay ahead of all these women in this family! A little help is appreciated. There is no amount too small - or too large, for that matter. You can simply click on the link provided and make a donation. Or, I am also going to post this letter on Facebook, and you can respond there, if you like.
On a final note, the walk is May 21st at Suwanee Town Center, Suwanee, GA; we'd love to have you join us, if you are in the area! It is always a good time and a free lunch!!
Thank you each one for your support!!
Again, the Sprinkle family thanks you for your support!!