2020 was certainly a year for the record books!! We were all impacted in various ways - one way this family was impacted was the "go and stop" of the Great Strides fund raising and walk. We were "on" for the walk a couple of times, but finally only had a "virtual walk" - thanks to all who participated in that. I believe Caleb was represented in five or six states!!! What a support group he has.
This year, right off the bat, the Atlanta branch of the Foundation has declared we will have a "virtual walk" this year. (Although I miss seeing all of the people, it is good to know what the plan is!!) So, we are beginning our fundraising now and will be walking "virtually" in May. This family appreciates what help you may be able to offer - no gift is too small.
This book - "Breath from Salt" - is such an awesome book. Now, I am not one to read non-fiction for fun. But, I download this book to my Kindle and began reading. I read for several days and looked in the lower right corner to see how far I had gotten - only 18%!!! After a few more days, I checked again - only 21%. Then I checked to see how long the book was - 677 pages!!!! A hard row to hoe, for sure!!! I finally downloaded the Audible book, and just finished it. We have lived with CF in our family for 11 years, but this book really brought home to me the tragedy this genetic disease is!!! And how recently the therapies have been developed!!!! And the parents and grandparents that have gone before us. If you have any interest in understanding what Erin and Darrell and Joshua (older brother) and Caleb go through daily, or if you have friends who have children with this disease, I encourage you to read this book. It is the story of parents and grandparents and kids; it is the story of doctors and nurses; it is the story of the champions of fund raising; it is the story of scientists; it is the story of discovery. Most of all, it is the story of a long life for Caleb. There is such hope in the future!
By the way, Caleb continues on Kalydeco, and is set to get the newest drug, Trikafta, sometime after June of this year. He will also get a new type of vest this year, making travel easier for him. There are new therapies being worked on that will continue to lengthen the years and improve the quality of Caleb's life. All of this comes from the Cystic Fibrosis Foundation.
Thank you each one for your support!!
Finally, if you would like to participate in our "virtual walk" by wearing Caleb's T-shirt and having a short video or picture made for publication on Caleb's site, just e-mail me at email@example.com and send me your size and a mailing address; we'll send you a shirt and will greatly appreciate your participation with us on May 15th!!
Again, the Sprinkle family thanks you for your support!!