Our Great Strides Story
At 10 days old, our Lu was diagnosed with Cystic Fibrosis. Cystic Fibrosis (CF), is a rare, genetic, life-shortening disease that impacts every organ in the body and makes it difficult to breathe.
Lucy is a strong little girl who is going to leave a strong mark on this world. After the initial diagnosis, I questioned A LOT. She doesn’t look “sick”.. are we sure you’re talking about the right baby? Why my baby? What even is CF? It still may not make sense but we aren't going to let CF define her. I am truly inspired by her strength with the day-to-day she has been dealt. From the multiple daily chest percussion therapy, to the enzymes and meds before each meal, she does it without a fuss.
Thanks to the Cystic Fibrosis Foundation, many advancements have been made in making the lives of those with CF more manageable. After learning of all the time, advocating, fundraising and research that made these advancements possible, I was truly overcome with gratitude.
It’s OUR turn. I truly feel led to do my part and help pave the way for my little Lu and all others with CF.
With supporters like you by our side, the Cystic Fibrosis Foundation can continue to lead the way in the fight against CF.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
By joining Lucy’s League Great Strides team and making a donation, you will be part of a group committed to ending this disease. Together, let’s make CF stand for Cure Found!
*please click Skylar to donate*
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.